Optimising Outcomes & Exploring Psychological Aspects of Alpha-mannosidosis

By the end of this webinar, participants will be able to:

1. Understand the role of enzyme replacement therapy in the management of Alpha-Mannosidosis.
2. Recognise the psychological symptoms associated with AM and their impact on patients and families.
3. Explore strategies for integrating psychological and psychosocial support into patient management.
4. Evaluate multidisciplinary approaches that combine medical and mental health care for improved outcomes.

Agenda (CEST):

• 5 min – Introduction – Julia Hennermann
• 25 min – The Role of Enzyme Replacement Therapy in Managing Alpha-Mannosidosis – Julia Hennermann
• 20 min – Psychological Symptoms in Individuals with Alpha-Mannosidosis – Sarah Haupenthal
• 10 min– Q&A – Both Speakers

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