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Catch up on the latest from the Think Rare Program — new webinars, expert insights, and program updates in every issue. Browse past newsletters or subscribe to keep early recognition of rare pediatric diseases front of mind.

Newsletters

Progressive Neurodegeneration in Children: Are We Diagnosing Too Late?

Progressive neurodegenerative disorders in children are rare but often diagnosed too late. This webinar explores why earlier recognition matters for clinicians.

June 11, 2026

Think Rare Expands to CLN2 (Batten Disease): New Live Webinars Coming Up

Think Rare expands to CLN2 (Batten Disease), a rare neurodegenerative disease in young children, with new live webinars coming up.

June 8, 2026
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