The Latest from the Think Rare Program

How to build a baseline assessment and monitor alpha-mannosidosis over time with validated clinical scales. A Think Rare webinar, 28 October 2026.

From first clue to confirmed diagnosis: live webinars with Dr. Christina Lampe and Dr. Neena Champaigne on recognizing, referring and testing rare disease.

Mild alpha-mannosidosis is easily overlooked. Dr. Karolina Stepien and Dr. João Durães on the subtle signals that should prompt earlier action.

Three free Think Rare webinars on alpha-mannosidosis: recognizing early signs, spotting mild forms, and monitoring progression and treatment impact.

Dr. Dipak Ram on building a multidisciplinary CLN2 service, delivering the diagnosis, and tracking disease progression. A Think Rare Program webinar.

Think Rare webinar with Dr. Marina Trivisano and Dr. Pasquale Striano on telling CLN2 Batten disease apart from epilepsy, autism, and developmental delay.

Progressive neurodegenerative disorders in children are rare but often diagnosed too late. This webinar explores why earlier recognition matters for clinicians.

Think Rare expands to CLN2 (Batten Disease), a rare neurodegenerative disease in young children, with new live webinars coming up.