Julia B. Hennermann

Dr Julia B. Hennermann is a prominent figure in the field of paediatric metabolic diseases, with a specialisation in lysosomal storage disorders (LSDs) and mucopolysaccharidoses (MPS). She serves as the Head of the Paediatric Metabolic Diseases Section and the Scientific Director of the Lysosomal Storage Diseases Research Area (Villa Metabolica) at the University Medical Centre in Mainz, Germany. Her work at Villa Metabolica, a renowned centre for the diagnosis and treatment of inherited metabolic disorders, has cemented her reputation as a leading expert in the management of these rare conditions.

Dr Hennermann's clinical practice is focused on providing comprehensive care for children and adolescents with a wide range of metabolic diseases. As a specialist in paediatric and adolescent medicine and a certified investigator for clinical studies, she plays a crucial role in the development of new therapies, particularly enzyme replacement therapy (ERT), which is a key topic of this webinar. Her research is centred on understanding the efficacy of these treatments, their long-term outcomes, and optimising patient management strategies to improve quality of life. She is a strong advocate for a multidisciplinary approach to care, ensuring that patients receive not only advanced medical treatment but also holistic support for their complex needs.

Dr Hennermann has contributed significantly to scientific literature, with numerous publications in peer-reviewed journals. She is a respected speaker at international conferences, where she shares her extensive knowledge on the clinical features, diagnosis, and therapeutic options for diseases like Alpha-Mannosidosis.