Webinars

Learn from the Experts, On Demand

Explore our full library of expert-led webinars on rare pediatric diseases. Watch real clinical cases, diagnostic strategies, and multidisciplinary discussions at your own pace and build the confidence to recognise rare conditions sooner.

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Supporting Mucopolysaccharidoses Patients during COVID-19 Epidemic
Christina Lampe; Lau Heather; Horovitz Dafne; Scarpa Maurizio

How COVID-19 disrupted MPS care in Italy, Brazil, and New York, and the resilience, telemedicine, and advocacy that kept patients safely on treatment.

60 minutes
English
Mucopolysaccharidosis (MPS)
Mucopolysaccharidoses And Alpha-mannosidosis Management: Cardiology
Elizabeth Braunlin

Explore how MPS and alpha-mannosidosis affect heart valves, coronary arteries, and conduction, and why early treatment matters for long term cardiac outcomes.

30 minutes
English
Mucopolysaccharidosis (MPS)
Mucopolysaccharidoses And Alpha-mannosidosis Management: Neurology
Maurizio Scarpa

Learn how CNS involvement in MPS and alpha-mannosidosis shows up in behavior, MRI findings, and spine changes, and why early recognition still matters most.

30 minutes
English
Mucopolysaccharidosis (MPS)
Mucopolysaccharidoses & Alpha-mannosidosis Management: Orthopaedics
Andrea Borgo

Compare orthopedic features of MPS and alpha-mannosidosis, and learn why early signs like painless joint stiffness deserve a closer look for metabolic disease.

30 minutes
English
Mucopolysaccharidosis (MPS)
Mucopolysaccharidoses & Alpha-mannosidosis: ENT & Anaesthesiology
Umut Akyol Mehmet; Matthias Schafer

Discover why ENT procedures carry major anesthesia risks in MPS patients, and why early surgery, careful planning, and specialized teams are essential.

50 minutes
English
Mucopolysaccharidosis (MPS)
Mucopolysaccharidoses & Alpha-mannosidosis: Diagnostic Challenges
Christina Lampe

Discussion on the challenges of diagnosing and managing MPS and alpha-mannosidosis, using real-world pediatric cases.

70 minutes
English
Mucopolysaccharidosis (MPS)
Short Stature & Other Endocrine Symptoms Of Mucopolysaccharidoses
Alessandro Cattoni

Learn why unexplained short stature can be the first clue to MPS, and how pediatric endocrinologists play a key role in earlier diagnosis and treatment.

30 minutes
English
Mucopolysaccharidosis (MPS)
Joint And Bone Manifestations Of Mucopolysaccharidoses (MPS)
Andrea Borgo

Explore key orthopedic red flags for MPS, from early kyphosis to trigger fingers, and why surgical timing across the spine, hips, and limbs is so critical.

30 minutes
English
Mucopolysaccharidosis (MPS)
Otorhinolaryngological Manifestations Of Mucopolysaccharidoses (MPS)
Umut Akyol Mehmet

Learn why ENT specialists are often the first to see MPS patients, and why early surgery in specialized centers is critical to avoid life threatening risks.

30 minutes
English
Mucopolysaccharidosis (MPS)
Clinical Features & Enzyme Replacement Therapy in MPS
Florian Lagler

Discover a detailed overview of MPS, covering its diagnosis, treatment, & enzyme replacement therapy (ERT).

30 minutes
English
Mucopolysaccharidosis (MPS)
Endocrine Manifestations Of Lysosomal Storage Disorders
Natalia Belova

Explore lysosomal storage disorders in pediatric endocrinology, learning how metabolic diseases present and how to recognize early warning signs.

30 minutes
English
Mucopolysaccharidosis (MPS)
Renovascular Hypertension
Kjell Tullus

Understand Renovascular Hypertension, its causes, diagnosis methods, and treatment strategies to improve outcomes in affected pediatric patients.

30 minutes
English
Mucopolysaccharidosis Type I - Hurler/Scheie And In Between
Susanne Gerit Kircher

Prof. Susanne Gerit-Kircher reviews MPS I's phenotypic spectrum, from Hurler syndrome to Scheie, emphasizing early diagnosis & management.

30 minutes
English
Mucopolysaccharidosis (MPS)
Secondary Osteoporosis In Children With Chronic Disease
Nick Shaw

Understand secondary osteoporosis in children with chronic diseases, reviewing causes, diagnosis, and management strategies in pediatric bone health.

30 minutes
English
Mucopolysaccharidoses : Misdiagnosis Of Rheumatic Conditions
Sylvia Kamphuis

Dr. Sylvia Kampuis compares JIA & lysosomal storage diseases like MPS, Gaucher, & Fabry, guiding accurate diagnosis.

30 minutes
English
Mucopolysaccharidosis (MPS)
Diagnosis Of Food Protein-Induced Enterocolitis Syndrome (FPIES)
Paul Turner

Learn to identify and manage Food Protein-Induced Enterocolitis Syndrome (FPIES), a serious non-IgE food allergy, for improved early recognition and treatment.

30 minutes
English
Systemic Juvenile Idiopathic Arthritis
Jordi Anton

Understand systemic juvenile idiopathic arthritis, its auto-inflammatory nature, clinical features, and effective treatment approaches for pediatric patients.

30 minutes
English
Pathophysiology And Management of Cystic Fibrosis
Rishi Pabary

Gain essential knowledge on cystic fibrosis pathophysiology, progression, and evolving treatment strategies in this comprehensive webinar for pediatricians.

30 minutes
English
Spot The Early Signs Of Crohn'S And Colitis
Rafeeq Muhammed

Gain essential insights into inflammatory bowel disease in children, spotting early signs of Crohn�s and colitis, and reviewing current treatment options.

30 minutes
English
The Evolution Of Meningitis Vaccines And The Impact Of Advocacy

Explore meningitis vaccine evolution, the impact of advocacy on vaccine development, and future prospects for Group B strep vaccines in pediatric care.

40 minutes
English
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