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2015 Excellence in Pediatrics Conference Testimonial Video Now Online!

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Experience the atmosphere, speakers and sessions from the the 7th edition of the Annual Excellence in Pediatrics Conference that took place in London in December 2015. Hear what EIP’s international delegates thought of the conference and see why 85% of attendees will be changing the way they practice after attending the meeting. With the 8th edition of the conference taking place in London from 8-10 December 2016, the video gives you a great summary of why you should attend Excellence in Pediatrics this year.


 


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Watch the EIP RARE DISEASE LECTURE on the Pediatrician’s Role in Understanding and Diagnosing Gaucher Disease at Yale University School of Medicine

Invitation to RARE DISEASE LECTURE

LECTURE: The Pediatrician’s Role in Understanding and Diagnosing Gaucher Disease

DATE: February 10, 2016, 3:00 to 4:30 p.m. at Yale University School of Medicine

SPEAKER: Dr Pramod Mistry, MD, PhD, FRCP, Professor of Medicine and Director of the Yale Lysosomal Disease Center and Gaucher Disease Treatment.

EVENT HOSTS: The Excellence in Pediatric (EIP) Institute: a not-for-profit with a global reach that represents and unites 45,000 pediatric healthcare professionals around the world – www.ineip.org

LOCATION: Yale University School of Medicine, Anlyan Center, 300 Cedar St. TAC-224, New Haven, CT 06519 - Attendance is free, but seating is limited

CONTACT: To reserve your seat, please contact Russell Hale at: rhale@ineip.org


Further information on the Speaker, Excellence in Pediatrics Lecture Series and the Venue Hosts

Pramod K Mistry, MD, PhD:

Dr. Mistry is the Director of National Gaucher Disease Treatment Center and Professor of Pediatrics and Medicine at Yale School of Medicine, New Haven, Connecticut. His clinical, research and educational activities center around inherited metabolic liver diseases and in particular on Gaucher disease. Dr. Mistry has authored numerous journal articles, book chapters and reviews on Gaucher disease. He has received several awards for his work on Gaucher disease, including the Alan Gordon Memorial Award, Physician of the year award from Genetic Disease Foundation of New York and Fellowship of the Royal College of Physicians of London. 

The Excellence in Pediatric (EiP) Institute: a nonprofit association with a global reach, that represents and unites 45,000 pediatric healthcare professionals around the world (www.ineip.org). EiP’s approach is to focus on a number of initiatives and campaigns that bring together the top national and international experts in a particular area of pediatrics to produce educational materials (free-to-view e-learnings, conference sessions and support portals) for pediatricians and parents.

The US Rare Disease Initiative is the latest part of the campaign with the concept being that by working with the leading US experts in Lysosomal Storage Diseases – EiP can provide the latest impartial and practical advice to pediatricians across the US to help to better detect and refer patients they suspect of having a rare disease.

The EIP Rare Disease Lecture Series:

The project takes the form of a lecture series across 5 US cities during the Fall and Winter of 2015-16, with a practical lecture delivered by KOLs in front of an audience of their colleagues, peers, and patient group representatives. The lectures will be filmed and made into free-to view e-leanings that can be viewed by frontline pediatricians online to increase the early detection rates of rare diseases across the US.

 

 

Yale University School of Medicine: Founded in 1810, the Yale School of Medicine is a world-renowned center for biomedical research, education and advanced health care. 

 

Directions to The Anlyan Center (TAC) Building

Taking I-95 North: Leave I-95 North at Exit 47 (Downtown New Haven/Rte 34). This is a LEFT side exit. This puts you onto an exit expressway. Merge onto CT-34 W via EXIT 1 toward Downtown New Haven. Then follow the directions below.
Taking I-95 South: Leave I-95 South at Exit 47 (Downtown New Haven/Rte 34), just after the bridge This is the center one of three exits. Merge onto CT-34 W via EXIT 1 toward Downtown New Haven. Then follow the directions below.
From I 91 South: Leave I-91 South at Exit 1 (Downtown New Haven/Rte 34). This exit puts you onto an exit expressway. Take Exit 1 (the first exit) off the expressway which merges onto Frontage Road and follow the directions below. 

If you want to park on the street, take EXIT 2 toward College St/ N. Frontage Rd. Turn Left onto College Street and continue for two blocks. Turn slight right onto Congress Ave. The Anlyan Center (TAC building) is at the next corner. If you will be parking in the garage suggested below, follow the directions listed below. 

If you prefer to park in a garage, follow the short expressway to its end in New Haven. You will be next to a huge parking garage (Air Rights Garage) at the intersection of York and North Frontage/Rte 34. Keep to your left on this final off ramp and then make a left into the garage and park. Take the elevator to street level. Walk on York St. towards the Medical center

(the corner with the Subway store) and cross the road (S. Frontage) and continue on York St. to the next intersection. Cross over and then make a L there on Cedar St. Walk about 1 long block to the intersection of Cedar St. and Congress Avenue. Cross there and enter the TAC Building (300 Cedar St) which is the huge building diagonally to your right at 11 O’Clock.

The Pediatrician’s Role in Identifying and Understanding Gaucher Disease

Learning Objectives

  • A better understanding of the signs and symptoms of Gaucher disease.
  • Ability to identify the key diagnostic features of Gaucher disease.
  • Understanding the ‘next steps’ to take after a diagnosis of a Gaucher disease to maximize treatment for the patient.

Lecture Summary:

  • Brief introduction on Gaucher disease, the first subtype of lysosomal storage diseases that had an effective enzyme replacement therapy.
  • Discuss current diagnostic methods including the unique challenges in identifying Gaucher disease and the shortcomings in current diagnostic options – Objective: Give pediatricians a basic understanding of the main diagnostic procedures for Gaucher disease to prevent costly delays in diagnosis that prevent patients from prompt treatment.
  • The importance of genotyping – Objective: Pediatricians will learn the importance of determining the specific genetic mutation affecting the Gaucher disease gene and the implications for other family members.
  • Consequences of delayed diagnosis and treatment – Objective: Pediatricians will learn that better clinical outcomes are associated with earlier diagnosis and how the varied manifestations of this disorder impact a patient’s quality of life.
  • What to look for – Objective: Pediatricians will learn how to recognize the key diagnostic features of Gaucher disease as well as uncommon presentations of the disorder that are not obviously connected to the underlying enzyme defect.
  • A heterogeneous disorder – Objective: Pediatricians will learn that there is a broad potential disease expression in Gaucher disease including diverse manifestations, a broad range in age of onset, and a wide clinical spectrum of disease severity.
  • Much to learn – Objective: Much about Gaucher disease is still not fully understood. Pediatricians will learn what aspects of the disorder still have unresolved questions including a full understanding of disease pathogenesis, the best management strategies for neuropathic disease, the underlying pathogenesis of bone disease, and the specific factors that cause the highly variable nature of the disorder.
  • Next steps – Objective: Pediatricians will learn where to refer patients to a specialist for treatment decisions and what organizations exist that can provide support and education for Gaucher patients. 
  • Summary/closing remarks

 

VIEW PREVIOUS LECTURE ON RARE DISEASES 

When Common Complaints are the Signs of Lysosomal Storage Diseases – Identifying LSDs - October 19th, 2015, Boston MA - Dr. Amel Karaa, Clinical Director, Lysosomal Storage Diseases Program Massachusetts General Hospital & Instructor of Medicine Harvard Medical 


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Early diagnosis can make a difference 

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DATE: February 10, 2016, 3:00 to 4:30 p.m. at Yale University School of Medicine

SPEAKER: Dr Pramod Mistry, MD, PhD, FRCP, Professor of Medicine and Director of the Yale Lysosomal Disease Center and Gaucher Disease Treatment.

Watch the lecture 

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The 8th Excellence in Pediatrics Conference will be organised in London 8-10 December 2016

The delegate feedback regarding the 2015 conference has been so positive - in terms of venue / location, the strength of the conference programme, faculty, and overall experience - that the plan is to hold the 2016 conference at the Church House in London this year too. London has proved to be a very convenient location for EiP’s international audience to get to and by holding the 2016 conference in London we are expecting that more child healthcare professionals from all over the world will have the opportunity to attend.

Through feedback and evaluations forms, delegates and Faculty members unanimously have agreed that the conference was a great success both by achieving the learnings objectives and also by offering a unique experience in relation to the conference organisation. This result would have not been achieved without this inspiring and dynamic city which has offered a central destination easy to reach from all regions, combined with high quality hosting services and an amazing historical venue at the heart of the city.

We are looking forward to seeing you in London this December.

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London is an inspiring city to host the 8th annual meeting offering a central destination easy to reach from all regions. Combined with the exceptional hosting services and historic venue offered by the Church House Conference Centre it was an easy choice to host the 2016 conference in London. Visit the conference website

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The Final Programme of the 7th EXCELLENCE IN PEDIATRICS conference is now published and available online

EDUCATIONAL HIGHLIGHTS

  • Featuring over 60 internationally renowned speakers with the leading experts from the worlds of research, pediatrics and adolescent health delivering sessions
  • Over 20 conference sub-sections/groups of connected presentations covering the latest trend and practice changes in pediatric (red sections) and adolescent medicine (blue sections)
  • A total of 70 scientific sessions across 4 parallel tracks in an inspiring mix of interactive formats and group learnings, allowing you to select session by format as well as topic  
  • Every session has 3 clear learning objectives, instantly deployable in your every-day practice and allowing you to know what you will learn from each session before you decide to attend 
  • Controversies debates, classes and hands-on workshops that put the delegate at the centre of interactive learning sessions  
  • Two inspiring free-to-attend 90 minute Leadership Workshops delivered by the Leadership Foundation for Higher Education, designed to improve the way you lead both as an individual and within your healthcare team 
  • An open access Active Healthy Families Focus Group taking pace on Friday 11th from 11:30-13:30 covering how best to encourage the families you support to lead a healthy lifestyle
  • 4 Child Health Policy Focus Groups taking place in parallel to the main conference looking to identify and overcome barriers to better pediatric and adolescent health policies – including HPV, Influenza and Meningitis Vaccination uptake, and Rare Diseases and Chronic Conditions

Download the Programme 

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Featuring over 60 internationally renowned speakers with the leading experts from the worlds of research, pediatrics and adolescent health delivering sessions. 70 scientific sessions across 4 parallel tracks in an inspiring mix of interactive formats and group learnings. 

Download the Programme 

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School Health in focus as part of a global collaboration with the International Schools Health Network and over 10 other partner organisations

The Excellence in Paediatrics Institute and the International School Health Network are delighted to be working together to improve school-based and school-linked health services. As part of the project, the first School Health Planning and Policy Meeting will be held as part of the 7th Excellence in Pediatrics Conference, London, 10-12 December 2015. The Conference provides the perfect context for a renewed focus on School Health as it already features the latest survey results from WHO’s Collaborating Centre for International Child & Adolescent Health Policy, with many of the leading researchers involved with Health Behaviour in School-Age Children trends already in attendance. The meeting also build on the on-going work of that the International School Health Network and its global partners from the education sector representing teachers (Education International) and school district/education ministry officials (ASCD) to promote global dialogue on integrating health and social programs within education systems. As the health sector seeks to improve its partnerships with other sectors through their Health in All Policies (HiAP) initiatives, a renewed commitment to school health services becomes part of that renewal with school systems.

The meeting in December will start a much-needed exchange of policy and practitioner perspectives, expertise and experiences to improve school health services globally.

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The Excellence in Paediatrics Institute and the International School Health Network are delighted to be working together to improve school-based and school-linked health services. As part of the project, the first School Health Planning and Policy Meeting will be held as part of the 7th Excellence in Pediatrics Conference, London, 10-12 December 2015

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EIP and the Cystinosis Foundation Launch the Cystinosis Awareness Campaign for Paediatricians and Parents

Building on the success of EiP’s Rare Diseases and Chronic Conditions Initiative, as well as the on-going work of the Cystinosis Foundation’s International Cystinosis Congress and Beyond Borders Programme, both organisations have launched a new joint Cystinosis Awareness Campaign aimed at both healthcare professionals through EIP and families of children with Cystinosis through the Foundation. The partnership to educate pediatricians will contribute to a further increase in the diagnosis of cystinosis at an even earlier age with initiation of treatment at an earlier age for affected individuals, thus improving long-term outcomes. A truly collaborative approach the Cystinosis Awareness Campaign aims to:

  • Help pediatricians spot the signs of Cystinosis as early as possible and refer, resulting in initiation of treatment even earlier than current standards.
  • Support parents and families with free-advice videos (Parents’ Talks) and other support resources. 

E-learnings for pediatricians on spotting the signs and parents’ advice videos, along with other free-to-use support resources will form a big part of the campaign. The free-to-view videos and all supporting materials are in the production and filming phase and will be hosted online on a purpose built website/portal throughout 2016

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A truly collaborative approach the Cystinosis Awareness Campaign aims to help pediatricians spot the signs of Cystinosis as early as possible and refer, resulting in initiation of treatment even earlier than current standards

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Record number of abstracts submitted for the 7th edition of EiP in London

EiP are delighted to report that it has been a record year for poster and oral abstract submissions with 185 papers submitted in the run-up to the conference. Of the submissions received the joint EIP and HBSC Review Committee has have accepted 50 abstracts as oral presentations to be delivered during the conference. 100 have also been accepted as poster presentations to be displayed over the first two days of the meeting. Congratulations to all those that have been accepted and EiP looks forward to welcoming you to London in December.

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The joint EIP and HBSC Review Committee has have accepted 50 abstract as oral presentations and 100 abstracts as poster presentations to be delivered during the conference

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Inaugural EIP and AOGIN HPV Asia Summit Chaired by Ian Frazer in Vietnam

The inaugural meeting of the HPV Asia Health Policy Focus Group took place on Friday 25 September 2015 at the Hotel Equatorial in Ho Chi Minh City, Vietnam. The meeting is an integral part of EiP’s wider global HPV Vaccination Campaign that was launched in 2012 to increase vaccination rates globally. By holding EiP’s first regional HPV Asia Focus Group in Vietnam EiP was able to identify and the current barriers to uptake in a targeted effort that goes hand-in-hand with the work of the Global Initiative. 

The Focus Group was chaired by Professor Ian Frazer from School of Medicine at the University of Queensland and was a joint collaboration with the AOGIN (http://www.aogin.com) with the focus on bringing together the key HPV stakeholders in SE Asia to formulate plans to improve current HPV vaccination coverage by overcoming the national barriers to uptake.

Countries represented in 2015 included: Indonesia, Singapore, Malaysia, Vietnam, Thailand, and the Philippines and plans are already underway for the 2nd HPV Asia Summit that will take place in partnership with AOGIN in Singapore in 2016.

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The inaugural meeting of the HPV Asia Health Policy Focus Group took place on Friday 25 September 2015 at the Hotel Equatorial in Ho Chi Minh City, Vietnam. The Focus Group was chaired by Professor Ian Frazer from School of Medicine at the University of Queensland and was a joint collaboration with the AOGIN (http://www.aogin.com

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EIP LECTURE SERIES: When Common Complaints are the Signs of Lysosomal Storage Diseases – Identifying LSDs

Dr. Amel Karaa,  Clinical Director, Lysosomal Storage Diseases Program Massachusetts General Hospital & Instructor of Medicine Harvard Medical School
Monday October 19th, 20153:00-4:30pm, Eastern Standard Time, Boston MA
 
 
On behalf of the Excellence in Pediatrics Institute, the not for profit association that represents and unites 45,000 pediatric healthcare professionals globally, we would like to invite you to join Dr. Amel Karaa,  Clinical Director, Lysosomal Storage Diseases Program Massachusetts General Hospital & Instructor of Medicine Harvard Medical School

Aimed at frontline pediatric healthcare professional and general pediatricians in particular, attendees will acquire a better understanding of the signs and symptoms of lysosomal storage diseases (LSDs) including the ability to identify the key diagnostic features of LSDs and differentiate them from more common diseases. Pediatricians will learn the appropriate ‘next steps’ to take after a diagnosis and how to maximize treatment for the patient. This is the first of 5 lectures that aims to increase awareness and referral rates for pediatric rare diseases.

Dr. Amel Karaa, Clinical Director, Lysosomal Storage Diseases Program, Massachusetts General Hospital & Instructor of Medicine, Harvard Medical School

Lecture Learning Objectives:
  • Understanding the signs and symptoms of lysosomal storage diseases.
  • Identifying the key diagnostic features of lysosomal storage diseases and differentiate them from more common diseases.
  • Understanding the ‘next steps’ to take after a diagnosis and how to maximize treatment for the patient.
 
  
Location: Massachusetts Biotechnology Council (MassBio),Collaboration Room, 300 Technology Square, 8th Floor, Cambridge, MA 02139


Further info on the Speaker, Excellence in Pediatrics, Lecture Series and the Venue Hosts

Dr Amel Karaa  - During her career, Dr. Karaa has always been intrigued by rare multi-systemic disorders and has tried to acquire a multidisciplinary training in basic research, clinical research, and medical service that uniquely shaped her to be a competent physician scientist. She is double board certified in internal medicine and clinical genetics, and leads the lysosomal storage disorder and adult mitochondrial clinics at the Massachusetts General Hospital in Boston.

The Excellence in Pediatric (EiP) Institute: a nonprofit association with a global reach, that represents and unites 45,000 pediatric healthcare professionals around the world - www.ineip.org. EiP’s approach is to focus on a number of initiatives and campaigns that bring together the top national and international experts in a particular area of pediatrics to produce educational materials (free-to-view e-learnings, conference sessions and support portals) for pediatricians and parents. The US Rare Disease Initiative is the latest part of the campaign with the concept being that by working with the leading US experts in Lysosomal Storage Diseases – EiP can provide the latest impartial and practical advice to pediatricians across the US to help to better detect and refer patients they suspect of having a rare disease.

The EIP Rare Disease Lecture Series: The project takes the form of a lecture series across 5 US cities during the Fall and Winter of 2015-16, with a practical lecture delivered by KOLs in front of an audience of their colleagues, peers, and patient group representatives. The lectures will be filmed and made into free-to-view e-leanings that can be viewed by frontline pediatricians online to increase the early detection rates of rare diseases across the US.

Mass Bio (the Massachusetts Biotechnology Council)a nonprofit organization "committed to advancing the development of critical new science, technology and medicines that benefit people worldwide." http://www.massbio.org/

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When Common Complaints are the Signs of Lysosomal Storage Diseases – Identifying LSDs 

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When Common Complaints are the Signs of Lysosomal Storage Diseases – Identifying LSDs - October 19th, 2015, Boston MA - Dr. Amel Karaa, Clinical Director, Lysosomal Storage Diseases Program Massachusetts General Hospital & Instructor of Medicine Harvard Medical School

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